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Wednesday the 2nd of April 2008

9:30 AM

Will Be Out Of Town A Few Days!/ April 2, 2008

Wednesday, April 02, 2008

Will Be Out Of Town A Few Days!
Current mood: good
Category: Goals, Plans, Hopes

Hello Friends!
  Just wanted to let you know, that I will be out of town, starting tomorrow. Bruce & I will be driving to Cincinnati. Every year, my lung disease, which is called Lam, has a conference. Or as we call it, Lamposium. It runs from the 4th - 6th. We meet other patients, doctor’s & researchers, as well as scientist.
  After that ends on Sunday @ noon. We will be checking into another motel. On Monday, the 7th, I will be having blood work & an MRI. It’s to check if the study drug, that I have been on since December, is shrinking the cysts & tumors (AML’s) in my kidneys. This is another disease that for some women that have Lam, sometimes also have, what is called TSC. Or Tuberous Sclerosis. I have noticed improvement on the outer side of me, but this will be the first time for them to check, inside to see how it is going. We should be driving home on Tuesday the 8th. Not sure though how late it may be. So, I guess don’t expect to hear from me till the 9th. Just the traveling wears me out. Even if I sleep in the car. Just wanted to let you know, so no one might start wondering, where I am. I’m not scared or anxious about it. Just hate all the packing! lol
 Take care & God Bless All Of You! Jackie / Jackie Moo

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